Brave Mama in My Family Story #9 - Laura Chisholm

March 14, 2016

Brave Mama in My Family Story #9 - Laura Chisholm

Hello Friends! Hope your Monday has gone really well. This week, my little family is on a little adventure,  different from our usual adventure back home and I am so glad to be able to slow down just a little to spend time with the people that truly matters. 

We are onto our 9th story. And I'm truly humbled and honoured by all the mamas that have shared their stories. No two stories are the same. And each story is unique and important. Every mum has displayed tremendous courage and love in living out their own journey. And that is what makes every story so beautiful. 

This week, I'm so honoured to have brave mama, Laura share her motherhood journey with us. Her journey is one that made my eyes well up with tears and my heart swelled with a lot of emotions. Her journey is a difficult one. And even though Laura's motherhood journey has been tough, Laura has a big heart for others. Laura hopes to encourage another who may be going through a similar journey through talking about her story. 

 

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 Laura Chisholm_Brave Mama in my Family_Heart in Box_photo 1

 

1. Tell us about yourself, where you are based and a little about your little one(s).

 

I'm Laura, a wife and a stay at home parent. I grew up in Canberra however, my husband and I live in Toowoomba, QLD with our daughter Zoe.

Zoe changed our world when she was born on 17th August 2015, as does any baby. However, Zoe has a form of Congential Myopathy- two mutations on her RYR1 Gene one of which has never been reported on before. This is a rare disease and has the heart breaking outcome of causing respiratory failure, most likely before Zoe's first birthday. Zoe is a happy baby, she loves to interact with us in her own special way. Due to her condition her movements are limited but that doesn't stop her from smiling! She requires a ventilator to help her breathe, is fed continually via a tube and needs her saliva suctioned from her mouth as she is unable to swallow.

As Zoe has gotten bigger it takes both my husband and I to move Zoe and care for her so we are both stay at home parents. We haven't been apart for longer than ten days (due to illness) since Zoe was born. So far neither of us wants to kill the other yet!

 

2. What is the most difficult/challenging thing you had to deal with in your mama-hood journey?


So far my mama journey has been challenging in its entirety. When Zoe entered the world she was unexpectedly, unresponsive. My husband and I were shocked as our daughter was immediately taken away from us and resuscitated. The first two hours of her life are a blur as she was intubated and we were told she would need to be transferred to a Neonatal Intensive Care Unit in Brisbane as soon as possible. At three hours old our little girl was transported to Brisbane by ambulance and admitted to Royal Brisbane and Women's Hospital NICU. I followed shortly after in a second ambulance and my husband arrived just after we had both been admitted.

We spent 12 weeks in NICU with no diagnosis but many possible causes ruled out. As Zoe grew bigger we made plans to be transferred to Lady Cilento Children's Hospital. Zoe then spent four weeks in the Pediatric Intensive Care Unit where thanks to a team of wonderful specialist were able to narrow down genetic testing and finally receive a diagnosis. Zoe's diagnosis was heartbreaking and was challenging to accept . They could have told us any diagnosis and it still wouldn't change the love we have for our daughter.

 

 "They could have told us any diagnosis and it still wouldn't change the love we have for our daughter"

- Laura Chisholm 

 

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#Brave Mama in My Family

 

After four months in hospital, 10 days of training and a house move we were finally able to bring our daughter home. Coming home was always a end goal something I wasn't sure would ever happen and when it did I didn't know what to do! It was like all of sudden we had to take care of all three of us - the shock of having a whole little person to take care of set in. The shock is still wearing off 10 weeks later. 

 

Laura Chisholm_Brave Mama in my Family_Heart in Box_photo 2

 

3. What is the bravest thing you had to do as a mama?

 

Any mother is selfless to their babies needs but this takes on a new meaning for me. The bravest thing I do for Zoe is to make sure each day she knows how much she is loved. That she gets to smile, play and lay in the sunshine. She deserves to live her best life, even on the days I'm not up to it I soldier on because it could be the last day I have with her.

 

"The bravest thing I do for Zoe is to make sure each day she knows how much she is loved... I soldier on because it could be the last day I have with her "

- Laura Chisholm

 

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#Brave Mama in My Family

 

4. Is there another brave mama who inspires you? How has she inspired you?

 

Any number of women sitting in a hospital right now with their baby no matter how little or big or those who like me care for their babies at home.

 

It's not an easy journey and I have met some incredible women in hospital and read countless other stories online. All of these women encourage and uplift each other and give you the strength to keep going. It makes you know you are not alone.

 

"All of these women encourage and uplift each other and give you the strength to keep going. It makes you know you are not alone."

- Laura Chisholm

 

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#Brave Mama in My Family

 

Laura Chisholm_brave mama in my family_heart in box_photo 3 

 

5. What would you say to another mama who may be going through similar circumstances?

 

It's not easy being in hospital or caring for a child with different needs but like any mama you do adjust. Eventually you learn the language of the doctors, the nurses become a second family ready to celebrate any achievement or help you through the hard times. With a little research you can find other mamas or families willing to share their experiences with you. Your family and friends will rally around you and move mountains to make things easy for you and give you any help you need. Open yourself up to people helping you so you can focus on your child/children they need you the most.

 

"Your family and friends will rally around you and move mountains to make things easy for you and give you any help you need."

- Laura Chisholm

 

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#Brave Mama in My Family

 

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Having a family and friends who would rally around you and support you is so important in any journey. Dear mamas, if you are having difficulties in your motherhood journey, no matter how small you think they may be, surround yourself with people who will come alongside you to uplift and support you. 

If you would, go over to Laura's Instagram to leave her a DM to encourage her. I'm positive it will bring a smile to her face, and make her harder days a little easier. 

Have an awesome week ahead and don't forget to slow down just a little this week to appreciate things that truly matter. 

x Meng

 

 

 

PS: If you are, or know of a mum who is going through a similar journey as Laura, please go the website listed below to be connected. To be in a community where mums can support mums. 

PPS: Click HERE to receive a weekly dose of inspiration and encouragement, and a FREE A4 inspirational Print in your inbox. 

 

You can follow Laura at:

Website: https://www.gofundme.com/kndbc5au

Instagram: http://www.instagram.com/chisandmeplusz

 




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